New diagnoses are downright scary. Finally getting answers to all our questions shouldn’t be. Finding answers should be reassuring and bring some measure of peace. But it rarely does. I learned this the hard way, as one child after another gained new diagnoses over the years. I was sure nothing could scare me anymore. But […]
Today is Day One
After Five Months Seizure-Free Logan Went Down He went down in the middle of the local Goodwill store, to the shock of at least one man, who asked if he was okay as I was jumping over obstacles to get to him … and with one seizure Logan broke a five-month-long answer to prayer. Living […]
Link between Epilepsy and Autism
Note from Kat – Jessica is one of my go-to friends for Epilepsy support – she was one of the first people I reached out to online when I was new to dealing with the diagnosis and the overwhelming information out there. Sometimes, facts say it all … welcome her to the Cafe and help […]
I’m Famous! Or Epilepsy Awareness and Depression
In honor of Epilepsy Awareness Month I had the chance to chat with Michelle Fischer, who broadcasts A View from My Window on the Indiana ARC website. Her hour-long interview with little ‘ol me, A View Into Epilepsy, was uploaded today and I encourage you to listen to it. The Story of Me — Why […]
Why I Blog About Special Needs Parenting, Autism, Epilepsy #NHBPM
WEGO’s National Health Blog Post Month – Day 1 – Why I Blog Special Needs Parenting is Sometimes a Selfish Job It sounds trite to say I blog because I know I can help others. Now, after living, breathing special needs parenting for almost 14 years, it just seems to encompass so much more. When […]
Our Epilepsy Reality Bites – Regression and Worry for Logan
Epilepsy is Far from Benign; Sometimes, our Reality Bites About three weeks ago, Logan had what we call a “bad seizure day” – as many of you already know, he has epilepsy and tends to have grand mal seizures as well as complex partial seizures. This day, he clustered – which meant that we spent […]