In honor of Epilepsy Awareness Month I had the chance to chat with Michelle Fischer, who broadcasts A View from My Window on the Indiana ARC website. Her hour-long interview with little ‘ol me, A View Into Epilepsy, was uploaded today and I encourage you to listen to it.
The Story of Me — Why the Cafe is a “Real” Kind of Place
And I realized something.
While I can’t always update as often as I would like here at the Cafe, my posts are real, honest, and represent a part of me that I have a hard time showing sometimes. Not because I’m some mysterious person, but because I’m human.
Dealing with an Epilepsy diagnosis, living with life and death epilepsy, juggling other diagnoses of autism, Axenfeld-Rieger Syndrome … all these things change a person, change a family. But they don’t have to change it, transform it beyond what you can handle.
My hope is that my talk with Michelle helps someone, anyone, out there who might not get that being real about epilepsy means accepting you don’t have to be perfect – that it will be hard to deal with sometimes – that you will be overwhelmed and disillusioned. But that doesn’t have to be the end of the story.